flok has hosted two unforgettable retreats designed for adults in our IMD community to connect, learn, and unwind in a beautiful camp setting.
The Adult Retreat is open to anyone 21+ with Classical HCU, MSUD, an Organic Acidemia, PKU, Tyrosinemia, or a Urea Cycle Disorder.
We'd love your input! Contact our Community Engagement Director Kristen Vanags at [email protected] to join the retreat planning team or share your ideas.
Join us at one of our flok Family Camps! Both our Camp West (June 4-7, 2026 in Oregon) and Camp East (September 17-20, 2026 in New Hampshire) offer a variety of activities and adventures for adults. Visit our camp webpage for details and itinerary.
Camp registration is FREE for anyone with an eligible IMD.
The sense of community that I had at the Adult Retreat was so great, because I finally didn't feel alone in having PKU.
I was able to talk about life as an adult with PKU – about work-life balance, insurance coverage, and hear people’s experiences with certain treatments. It gave me a lot of perspective.
Chatting with other people who are motivated to have good management of their condition helped me create a more consistent diet and routine for myself when I got back.
Just hanging out and talking with people makes you realize there’s a lot of us in the same boat.
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