flok has hosted two unforgettable retreats designed for adults in our IMD community to connect, learn, and unwind in a beautiful camp setting.
The Adult Retreat is open to anyone 21+ with Classical HCU, MSUD, an Organic Acidemia, PKU, Tyrosinemia, or a Urea Cycle Disorder.
We'd love your input! Contact our team to support retreat planning team or share your ideas.
Join us at one of our flok Family Camps! Both our Camp West and Camp East offer a variety of activities and adventures for adults. Visit our camp webpage for details and itinerary.
Camp registration is FREE for anyone with an eligible IMD.
The sense of community that I had at the Adult Retreat was so great, because I finally didn't feel alone in having PKU.
I was able to talk about life as an adult with PKU – about work-life balance, insurance coverage, and hear people’s experiences with certain treatments. It gave me a lot of perspective.
Chatting with other people who are motivated to have good management of their condition helped me create a more consistent diet and routine for myself when I got back.
Just hanging out and talking with people makes you realize there’s a lot of us in the same boat.
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Drop your email below and we'll let you know when applications are being accepted.