flok Adult Retreat—
2027 Dates & Location TBD

flok has hosted two unforgettable retreats designed for adults in our IMD community to connect, learn, and unwind in a beautiful camp setting. 

The Adult Retreat is open to anyone 21+ with Classical HCU, MSUD, an Organic Acidemia, PKU, Tyrosinemia, or a Urea Cycle Disorder.    

Help Plan Our 2027 Retreat

We'd love your input! Contact our Community Engagement Director Kristen Vanags at [email protected] to join the retreat planning team or share your ideas.

Looking for Community Connection Sooner?

Join us at one of our flok Family Camps! Both our Camp West (June 4-7, 2026 in Oregon) and Camp East (September 17-20, 2026 in New Hampshire) offer a variety of activities and adventures for adults. Visit our camp webpage for details and itinerary. 

Camp registration is FREE for anyone with an eligible IMD.

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What Retreat-goers are Saying:

The sense of community that I had at the Adult Retreat was so great, because I finally didn't feel alone in having PKU.    

Christina, PKU

I was able to talk about life as an adult with PKU – about work-life balance, insurance coverage, and hear people’s experiences with certain treatments. It gave me a lot of perspective.

James, PKU

Chatting with other people who are motivated to have good management of their condition helped me create a more consistent diet and routine for myself when I got back.

LYNN, PKU

Just hanging out and talking with people makes you realize there’s a lot of us in the same boat.

Garrett, HCU