flok Health organizes for the future and names Jeb Haber as its first CEO

flok Health organizes for the future and names Jeb Haber as its first CEO

As flok continues to grow, we’re evolving our leadership structure to better support the tools and programs our community members rely on. Jeb Haber has been named as flok’s first Chief Executive Officer and Sarah Chamberlin as Chief Program Officer.

Community Spotlight: Alyssa Keller

Community Spotlight: Alyssa Keller

Meet Alyssa Keller—Guthrie-Koch Scholar, Certified Genetic Counselor (CGC), and Guthrie-Koch Scholarship Committee member at flok.

More Than a Label: The Science and Heart Behind flok’s Food Data

More Than a Label: The Science and Heart Behind flok’s Food Data

Meet Jenn Beazer, Dietitian and Low-Pro Cook Extraordinaire.

flok Family Camp East: Where Fun & Community Meet Lakeside

flok Family Camp East: Where Fun & Community Meet Lakeside

Over 150 community members gathered in Tuftonboro, New Hampshire for our second annual flok Family Camp East. Learn what made this camp experience unforgettable.

Community Spotlight: Will McClintock

Community Spotlight: Will McClintock

Guthrie-Koch Scholar & flok intern Will McClintock chases his dreams while balancing life with PKU.

What Happens When a Prescription Drug Goes Generic?

What Happens When a Prescription Drug Goes Generic?

Many members of our rare metabolic community rely on specialty prescription drugs—often brand-name medications. Learn what happens when generic versions become available.

Sephience™ Gets FDA Approval for Treatment of PKU

Sephience™ Gets FDA Approval for Treatment of PKU

The U.S. Food and Drug Administration approved Sephience™ (sepiapterin), a new treatment from PTC Therapeutics, for children and adults living with PKU.

flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight

flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight

This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.

Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars

Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars

The Guthrie-Koch Scholarship program has helped more than 130 students pursue their academic and career goals. Hear the stories and ambitions of our 2025 scholarship winners.

Community Spotlight: Mitchell and Amy Magyar

Community Spotlight: Mitchell and Amy Magyar

Argininosuccinic Aciduria  Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »