Community Spotlight: Will McClintock
We introduced Will to our flok community in 2023 when he won a Guthrie-Koch Scholarship. Now a rising junior at University of Washington, Will spent his... more »
What Happens When a Prescription Drug Goes Generic?
Many members of our rare metabolic community rely on specialty prescription drugs—often brand-name medications. Brand-name drugs are protected by... more »
Sephience™ Gets FDA Approval for Treatment of PKU
Join Us to Learn MoreWhatWebinar co-hosted by flok and PTC TherapeuticsWhyTo answer your questions about SephienceWhoFor the flok communitySign Up For... more »
flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight
This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.
Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars
Each year, flok celebrates young adults who are balancing rare metabolic conditions with big ambitions. Since 1997, the Guthrie-Koch Scholarship program... more »
Community Spotlight: Mitchell and Amy Magyar
Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »
Better Research Through Community-Centered Data Governance
“There’s solid evidence that when you have a deep level of ongoing engagement like the flok community has, you inform better research with better clinical... more »
Shaping Treatment Together: The Power of Patient Voices in EL-PFDD Meetings
Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »
flok Health Awarded Chan Zuckerberg Initiative’s Rare As One Project Grant
MONTCLAIR, N.J., (Oct. 1, 2024) – flok Health (flok) is proud to announce its selection as a member of the Chan Zuckerberg Initiative’s (CZI)... more »
flok Family Camp East 2024 Recap
FAST FACTS:FAMILY CAMP EAST 2024WhereCamp Belknap in Tuftonboro, New Hampshire WhyTo connect, have fun, and unite in a shared vision for better... more »