Community Spotlight: Mitchell and Amy Magyar
Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »
Better Research Through Community-Centered Data Governance
“There’s solid evidence that when you have a deep level of ongoing engagement like the flok community has, you inform better research with better clinical... more »
Shaping Treatment Together: The Power of Patient Voices in EL-PFDD Meetings
Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »
flok Health Awarded Chan Zuckerberg Initiative’s Rare As One Project Grant
MONTCLAIR, N.J., (Oct. 1, 2024) – flok Health (flok) is proud to announce its selection as a member of the Chan Zuckerberg Initiative’s (CZI)... more »
flok Family Camp East 2024 Recap
FAST FACTS:FAMILY CAMP EAST 2024WhereCamp Belknap in Tuftonboro, New Hampshire WhyTo connect, have fun, and unite in a shared vision for better... more »
Meet the flok: Organic Acidemias
Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »
Newborn Screening: A Lifesaving Start
For caregivers and those living with an inherited metabolic condition, newborn screening plays a pivotal role in our journeys. For some, it was a... more »
Back-to-School Tips for flok Parents
As the school year approaches, excitement builds for new classes and friendships. For parents of a child with an inherited metabolic condition, this... more »
Meet the flok: Urea Cycle Disorders (UCDs)
Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »
Infinite Horizons: flok’s 2024 Guthrie-Koch Fellows
At flok, we recognize the significant hurdles inherited metabolic conditions present, and celebrate the triumphs of those achieving their academic,... more »