Over 150 community members gathered in Tuftonboro, New Hampshire for our second annual flok Family Camp East. Learn what made this camp experience unforgettable.
Guthrie-Koch Scholar & flok intern Will McClintock chases his dreams while balancing life with PKU.
Many members of our rare metabolic community rely on specialty prescription drugs—often brand-name medications. Learn what happens when generic versions become available.
The U.S. Food and Drug Administration approved Sephience™ (sepiapterin), a new treatment from PTC Therapeutics, for children and adults living with PKU.
This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.
The Guthrie-Koch Scholarship program has helped more than 130 students pursue their academic and career goals. Hear the stories and ambitions of our 2025 scholarship winners.
Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »
“There’s solid evidence that when you have a deep level of ongoing engagement like the flok community has, you inform better research with better clinical... more »
Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »
MONTCLAIR, N.J., (Oct. 1, 2024) – flok Health (flok) is proud to announce its selection as a member of the Chan Zuckerberg Initiative’s (CZI)... more »
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