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Sarah Chamberlin

Sarah Chamberlin

Sarah is the parent of two daughters, one with PKU born in 2013, and she thrives at the intersection of advocacy and tech. When her daughter was diagnosed with PKU, she reached out to Virginia Schuett to collaborate, and obtained a grant to develop How Much Phe, which launched in July 2014. She assumed the directorship of PKU News when Virginia Schuett retired in 2015. 

The Sky's the Limit: Guthrie-Koch Scholars of 2023-2024

The Sky's the Limit: Guthrie-Koch Scholars of 2023-2024

At flok, we recognize the significant challenges inherited metabolic disorders present, and the triumph of overcoming them to achieve an academic or... more »

Take Flight With flok: Announcing our $1 Million Dollar Capacity-Building Campaign

Take Flight With flok: Announcing our $1 Million Dollar Capacity-Building Campaign

2023 was a pivotal year for us at flok, as we embraced growth and transformation. Today, I’m asking you to support the next phase of our work. For... more »

Stronger Together: Uniting our flok

Stronger Together: Uniting our flok

Community is essential to flok: it fundamentally drives our vision, learning, and success. We expanded our mission to serve the broader metabolic community... more »

Beta Test the flok app: The Role of Community in App Development and Readiness

Beta Test the flok app: The Role of Community in App Development and Readiness

As a comprehensive health tool designed for you by people like you, the flok app unlocks a holistic, data-driven approach to managing your metabolic... more »

flok in Flight: Our Community

flok in Flight: Our Community

We're well into floktober, which means PKU News has begun its transformation into flok, an organization with an expanded mission to advance care and... more »

Exploring the flok app

Exploring the flok app

The flok app: Empowering us to Improve our Care and Daily Life SIGN UP TO TEST THE APP! In the 1980s, the PKU community had no standardized dietary... more »

F-L-O-K or flok?

F-L-O-K or flok?

PKU News recently announced that we’re changing our name to flok and expanding our mission. This is one in a series of posts designed to explore... more »

PKU News becomes flok!

PKU News becomes flok!

As we celebrate Newborn Screening Awareness Month, PKU News is thrilled to share important news for everyone connected to our inherited metabolic... more »