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Last updated November 1st, 2026
This Privacy Notice for flok Health (doing business as flok) ("we," "us," or "our"), describes how and why we might access, collect, store, use, and/or disclose (collectively, "process") your personal information when you use our services ("Services"). For purposes of this Privacy Notice, "personal information" means information about an identifiable individual, but does not include aggregate information or data that has been de-identified or anonymized such that the individual is no longer identifiable, whether directly or in combination with other information reasonably available to us. This Privacy Notice applies when you:
Our Services may contain links to other websites and applications that are not owned or controlled by us. This Privacy Notice does not apply to the privacy practices of such other websites or applications. We encourage you to review the privacy notice of every website and application you visit or use, as we are not responsible for their content, privacy policies, or practices.
Questions or concerns? Reading this Privacy Notice will help you understand your privacy rights and choices. We are responsible for making decisions about how your personal information is processed. If you do not agree with our policies and practices, please do not use our Services. If you still have any questions or concerns, please contact us at privacy@flok.org.
This summary provides key points from our Privacy Notice, but you can find out more details about any of these topics by clicking the link following each key point or by using our table of contents below to find the section you are looking for.
What personal information do we process? When you visit, use, or navigate our Services, we may process personal information depending on how you interact with us and the Services, the choices you make, and the products and features you use. Learn more about personal information you disclose to us.
Do we process any sensitive personal information? Some of the information may be considered "special" or "sensitive" in certain jurisdictions, for example your racial or ethnic origins, genetic information, and sexual orientation. We may process sensitive personal information when necessary, with your consent, or as otherwise permitted by applicable law. Learn more about sensitive information we process.
Do we collect any information from third parties? We may collect information from public databases, marketing partners, social media platforms, and other outside sources. Learn more about information collected from other sources.
How do we process your information? We process your information to provide, improve, and administer our Services, communicate with you, for security and fraud prevention, and to comply with law. We may also process your information for other purposes with your consent. We process your information only when we have a valid legal reason to do so. Learn more about how we process your information.
In what situations and with which types of parties do we share personal information? We may share information in specific situations and with specific categories of third parties. Learn more about when and with whom we share your personal information.
How do we keep your information safe? We have adequate organizational and technical processes and procedures in place to protect your personal information. However, no electronic transmission over the internet or information storage technology can be guaranteed to be 100% secure, so we cannot promise or guarantee that hackers, cybercriminals, or other unauthorized third parties will not be able to defeat our security and improperly collect, access, steal, or modify your information. Learn more about how we keep your information safe.
What are your rights? Depending on where you are located geographically, the applicable privacy law may mean you have certain rights regarding your personal information. Learn more about your privacy rights.
How do you exercise your rights? The easiest way to exercise your rights is by submitting a data subject access request, or by contacting us. We will consider and act upon any request in accordance with applicable data protection laws.
Want to learn more about what we do with any information we collect? Review the Privacy Notice in full.
In Short: We collect personal information that you provide to us.
We collect personal information that you voluntarily provide to us when you register on the Services, express an interest in obtaining information about us or our products and Services, when you participate in activities on the Services, or otherwise when you contact us.
Personal Information Provided by You. The personal information that we collect depends on the context of your interactions with us and the Services, the choices you make, and the products and features you use. The personal information we collect may include the following:
Sensitive Information. When necessary, with your consent or as otherwise permitted by applicable law, we process the following categories of sensitive information:
Health and Wellness Data (App Users). If you use the flok app, we may collect health and wellness data that you choose to share in the app. This data is used to provide you the services offered by the app, and, only if you separately consent, to contribute to flok Research. Health and wellness data we may collect includes:
You may withdraw your consent to flok Research at any time by going to your account settings in the app or contacting us at privacy@flok.org. Upon withdrawal, no further research will be conducted using your identifiable personal information. However, withdrawal cannot be applied retroactively to research already performed or to data that has already been de-identified, anonymized, or included in published results. These directions, and the full flok Research consent, are also at research.flok.org.
We process your health data only for the purposes for which you have consented, including providing personalized app features and, where you have separately opted in, contributing de-identified or identified data to flok Research.
Payment Data. We may collect data necessary to process your payment if you choose to make purchases, such as your payment instrument number, and the security code associated with your payment instrument. All payment data is handled and stored by Stripe. You may find their privacy notice link(s) here: https://stripe.com/privacy.
Application Data. If you use the flok app, we also may collect the following information if you choose to provide us with access or permission:
This information is primarily needed to maintain the security and operation of our application(s), for troubleshooting, and for our internal analytics and reporting purposes.
All personal information that you provide to us must be true, complete, and accurate, and you must notify us of any changes to such personal information.
In Short: Some information — such as your Internet Protocol (IP) address and/or browser and device characteristics — is collected automatically when you visit our Services.
We automatically collect certain information when you visit, use, or navigate the Services. This information does not reveal your specific identity (like your name or contact information) but may include device and usage information, such as your IP address, browser and device characteristics, operating system, language preferences, referring URLs, device name, country, location, information about how and when you use our Services, and other technical information. This information is primarily needed to maintain the security and operation of our Services, and for our internal analytics and reporting purposes.
Like many businesses, we also collect information through cookies and similar technologies.
The information we collect includes:
Our use of information received from Google APIs will adhere to Google API Services User Data Policy, including the Limited Use requirements.
flok operates community forums where members can share experiences, ask questions, and connect with others affected by inherited metabolic conditions. If you participate in our community forums, please be aware of the following:
Publicly visible content. Posts, comments, and profile information you share in the forums are visible to other registered members of the flok community. Do not post information in the forums that you wish to keep private.
Content you submit. We collect the content of your posts, the username associated with them, timestamps, and your engagement activity (such as reactions and replies).
Health information caution. Because our forums relate to medical conditions, members often share sensitive health information. Please exercise care about the personal health information you share, as it will be visible to other members.
Moderation. flok staff may review forum content for community safety, policy compliance, and research insights (in aggregated, de-identified form). We may retain content for as long as necessary to operate the forums and, if required, for legal or safety purposes.
Account deletion. If you delete your account, your posts may be anonymized rather than deleted in order to preserve the integrity and continuity of forum discussions for other members.
Information Collected at Events. flok hosts and participates in events, including community conferences, camps, community meetups, educational webinars, and research information sessions. When you register for or attend a flok event, we may collect:
Photography and recording. We may photograph or record in-person events. Notice will be provided at each event, and you will have the opportunity to opt out of being photographed or recorded. Images and recordings may be used for flok's communications, website, and promotional materials.
Dietary or accessibility information you provide for event logistics may include health-related data. We use this information only for the purposes of accommodating your needs at the specific event.
In Short: We may collect limited data from public databases, marketing partners, social media platforms, and other outside sources.
In order to enhance our ability to provide relevant marketing, offers, and services to you and update our records, we may obtain information about you from other sources, such as joint marketing partners, affiliate programs, data providers, social media platforms, and from other third parties, provided that either you have consented to the collection, such sources are permitted to share such information, the information falls within the narrow categories of "publicly available" personal information recognized under applicable privacy law, or the collection is otherwise required or permitted by law. This information includes mailing addresses, job titles, email addresses, phone numbers, intent data (or user behavior data), Internet Protocol (IP) addresses, social media profiles, social media URLs, and custom profiles, for purposes of targeted advertising and event promotion.
If you interact with us on a social media platform using your social media account (e.g., Facebook or X), we receive personal information about you from such platforms such as your name, email address, and gender. You may have the right to withdraw your consent to processing your personal information. Learn more about withdrawing your consent. Any personal information that we collect from your social media account depends on your social media account's privacy settings. Please note that the social media platforms’ own use of your information is not governed by this Privacy Notice.
In Short: We process your information to provide, improve, and administer our Services, communicate with you, for security and fraud prevention, and to comply with law. We process the personal information for the following purposes listed below. We may also process your information for other purposes only with your prior explicit consent.
We process your personal information for a variety of reasons, depending on how you interact with our Services, including:
In Short: We only process your personal information when we believe it is necessary and we have a valid legal reason (i.e., legal basis) to do so under applicable law, like with your consent, to comply with laws, to provide you with services to enter into or fulfill our contractual obligations, to protect your rights, or to fulfill our legitimate business interests.
If you are located in Canada, this section applies to you.
By using our Services and/or providing personal information to us, you voluntarily consent to the collection, use, and disclosure of personal information and other information as specified in this Privacy Notice. Without limiting the foregoing, we may on occasion ask you to give us specific permission (i.e., express consent) to use your personal information for a specific purpose, or process your personal information in situations where your permission can be inferred (i.e., implied consent) if the purpose of the collection, use or disclosure is reasonably expected and you voluntarily provide the information. You can withdraw your consent at any time, subject to legal or contractual restrictions and reasonable notice where provided by applicable law.
If you are in Quebec, we collect personal information about a child under 14 only with the consent of the person having parental authority or the child's tutor, unless collecting it is clearly for the child's benefit.
We may collect, use or disclose your personal information without your knowledge or consent only where the law permits or requires it, for example to comply with a subpoena, warrant or court order.
For all users, we rely on your explicit, informed consent as the legal basis for:
Consent is obtained through a clear, affirmative opt-in process. We will not condition your access to core flok Services on your agreement to provide health data or participate in research. You may withdraw any consent at any time by contacting us at privacy@flok.org or through your account settings.
In Short: We may share information in specific situations described in this section and/or with the following categories of third parties.
Vendors, Consultants, and Other Third-Party Service Providers. We may share your data with third-party vendors, service providers, contractors, or agents ("third parties") who perform services for us or on our behalf and require access to such information to do that work. We have contracts in place with our third parties, which are designed to help safeguard your personal information. This means that they cannot do anything with your personal information unless we have instructed them to do it. They will also not share your personal information with any organization apart from us. They also commit to protect the data they hold on our behalf and to retain it for the period we instruct.
The categories of third parties we may share personal information with are as follows:
We also may need to share your personal information in the following situations:
In Short: We may use cookies and other tracking technologies to collect and store your information.
We may use cookies and similar tracking technologies (like web beacons and pixels) to gather information when you interact with our Services. Some online tracking technologies help us maintain the security of our Services and your account, prevent crashes, fix bugs, save your preferences, and assist with basic site functions.
We also permit third parties and service providers to use online tracking technologies on our Services for analytics and advertising, including to help manage and display advertisements, or to tailor advertisements to your interests (depending on your communication preferences). Where required by applicable law, including in Canada, this use of online tracking technologies for behavioural advertising is also disclosed to you directly on our website or application (for example, through a cookie banner) at or before the time such information is collected, and not only in this Privacy Notice. The third parties and service providers use their technology to provide advertising about products and services tailored to your interests which may appear either on our Services or on other websites.
To the extent these online tracking technologies are deemed to be a "sale"/"sharing" (which includes targeted advertising, as defined under the applicable laws) under applicable US state laws, or if you are located in Canada, you can opt out of these online tracking technologies by submitting a request by using the contact details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?"
Other opt out means include http://optout.networkadvertising.org/ and http://www.networkadvertising.org/mobile-choice.
Specific information about how we use such technologies and how you can refuse certain cookies is set out in our Cookie Policy.
We may share your information with Google Analytics to track and analyze the use of the Services. The Google Analytics Advertising Features that we may use include: Google Analytics Demographics and Interests Reporting. To opt out of being tracked by Google Analytics across the Services, visit https://tools.google.com/dlpage/gaoptout. You can opt out of Google Analytics Advertising Features through Ads Settings and Ad Settings for mobile apps. Other opt out means include http://optout.networkadvertising.org/ and http://www.networkadvertising.org/mobile-choice. For more information on the privacy practices of Google, please visit the Google Privacy & Terms page.
In Short: We keep your information for as long as necessary to fulfill the purposes outlined in this Privacy Notice unless otherwise required or permitted by applicable law.
We will only keep your personal information for as long as it is necessary for the purposes set out in this Privacy Notice, unless a longer retention period is required or permitted by applicable law.
When the purpose of collection is no longer required and/or we have no ongoing legitimate legal or business need to process your personal information, we will either delete or de-identify (including, where appropriate, irreversibly anonymize) such information so that it is no longer reasonably capable of identifying you, whether alone or in combination with other information reasonably available to us, or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information and isolate it from any further processing until deletion is possible. In this Privacy Notice, "anonymized" data refers to de-identified data that has been processed such that it can no longer reasonably be used, alone or in combination with other information, to identify or re-identify an individual.
In Short: We aim to protect your personal information through a system of organizational and technical security measures.
We have implemented appropriate and reasonable technical and organizational security measures designed to protect the security of any personal information we process. Despite our safeguards and efforts to secure your information, however, no electronic transmission over the Internet or information storage technology can be guaranteed to be 100% secure, so we cannot promise or guarantee that hackers, cybercriminals, or other unauthorized third parties will not be able to defeat our security and improperly collect, access, steal, or modify your information. Although we will do our best to protect your personal information, transmission of personal information to and from our Services is at your own risk. You should only access the Services within a secure environment.
In Short: Depending on your state of residence in the US or in some countries, such as Canada, you may have rights that allow you greater access to and control over your personal information.
In some US states or countries (such as Canada), you have certain rights under applicable data protection laws depending on your location of residence. For residents of Canada, these rights generally include, across all of Canada, the right (i) to request access and obtain a copy of your personal information and information on all use and disclosures of that personal information, except where that release is not required or is prohibited by applicable law, and (ii) to request rectification of inaccurate personal information. In addition, if you are a resident of Quebec, you may also have the right (iii) to request the deletion of personal information in certain circumstances, and (iv) to data portability, and (v) to ask us to stop disseminating your personal information, or to de-index any hyperlink attached to your name that gives access to it, where the law allows. Automated decision-making rights, including the right not to be subject to solely automated decision-making, are not currently established under Canadian privacy law outside Quebec, but if a decision that produces legal or similarly significant effects about you is made solely by automated means, we will, where required by applicable law, inform you, explain the main factors, and offer a simple way to request human review. Residents of other jurisdictions may have additional rights, including to restrict the processing of your personal information and, if applicable, to data portability. In certain circumstances, you may also have the right to object to the processing of your personal information. You can make such a request by contacting us by using the contact details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?" below.
We will consider and act upon any request in accordance with this policy and applicable law. We will respond within 30 days of receiving your request, or tell you within that time if we need longer, as applicable law allows.
Our Privacy Officer is the person in charge of the protection of personal information at flok. You can reach our Privacy Officer at privacy@flok.org. If you are not satisfied with how we handle your request, you also have the right to file a complaint with the Office of the Privacy Commissioner of Canada or, if you are in Quebec, with the Commission d'accès à l'information du Québec.
Withdrawing your consent: If we are relying on your consent to process your personal information, which may be express and/or implied consent depending on the applicable law, you have the right to withdraw your consent at any time, subject to legal or contractual restrictions and reasonable notice where provided by applicable law. You can withdraw your consent at any time by contacting us by using the contact details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?" below.
However, please note that this will not affect the lawfulness of the processing before its withdrawal nor, when applicable law allows, will it affect the processing of your personal information conducted in reliance on lawful processing grounds other than consent. Withdrawing your consent does not stop us from collecting, using or disclosing your personal information where the law permits or requires us to do so without consent. If withdrawing your consent affects a service we provide to you, we will tell you.
Opting out of marketing and promotional communications: You can unsubscribe from our marketing and promotional communications at any time by clicking on the unsubscribe link in the emails that we send, replying "STOP" or "UNSUBSCRIBE" to the SMS messages that we send, or by contacting us using the details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?" below. You will then be removed from the marketing lists. However, we may still communicate with you — for example, to send you service-related messages that are necessary for the administration and use of your account, to respond to service requests, or for other non-marketing purposes.
If you would at any time like to review or change the information in your account or terminate your account, you can:
Upon your request to terminate your account, we will deactivate or delete your account and information from our active databases. However, we may retain some information in our files to prevent fraud, troubleshoot problems, assist with any investigations, enforce our legal terms and/or comply with applicable legal requirements, or as otherwise described under “HOW LONG DO WE KEEP YOUR INFORMATION?”.
Cookies and similar technologies: Most Web browsers are set to accept cookies by default. If you prefer, you can usually choose to set your browser to remove cookies and to reject cookies. If you choose to remove cookies or reject cookies, this could affect certain features or services of our Services.
If you have questions or comments about your privacy rights, you may email us at privacy@flok.org.
Most web browsers and some mobile operating systems and mobile applications include a Do-Not-Track ("DNT") feature or setting you can activate to signal your privacy preference not to have data about your online browsing activities monitored and collected. At this stage, no uniform technology standard for recognizing and implementing DNT signals has been finalized. As such, we do not currently respond to DNT browser signals or any other mechanism that automatically communicates your choice not to be tracked online. If a standard for online tracking is adopted that we must follow in the future, we will inform you about that practice in a revised version of this Privacy Notice.
Certain state laws may require us to disclose how we respond to web browser DNT signals. Because there currently is not an industry or legal standard for recognizing or honoring DNT signals, we do not respond to them at this time.
California Civil Code Section 1798.83, also known as the "Shine The Light" law, permits our users who are California residents to request and obtain from us, once a year and free of charge, information about categories of personal information (if any) we disclosed to third parties for direct marketing purposes and the names and addresses of all third parties with which we shared personal information in the immediately preceding calendar year. If you are a California resident and would like to make such a request, please submit your request in writing to us by using the contact details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?"
The use of information received from Google Health Connect and Apple HealthKit will adhere to the applicable permissions policies, including the Limited Use requirements.
In Short: Yes, we will update this notice as necessary to stay compliant with relevant laws.
We may update this Privacy Notice from time to time. The updated version will be indicated by an updated "Last updated" date at the top of this Privacy Notice. If we make material changes to this Privacy Notice, we may notify you either by prominently posting a notice of such changes or by directly sending you a notification. We encourage you to review this Privacy Notice frequently to be informed of how we are protecting your information.
If you have questions or comments about this notice, you may contact us by email at privacy@flok.org, by phone at (973) 619-9160, or contact us by post at:
flok HealthYou may review and update the data provided through the flok app directly in the app. If you have questions or concerns about the personal data we have on file for you, you may contact us at support@flok.org. Based on the applicable laws of your country or state of residence in the US, you also may have the right to request access to the personal information we collect from you, details about how we have processed it, correct inaccuracies, or delete your personal information, or other rights as described above under “WHAT ARE YOUR PRIVACY RIGHTS?”. These rights may be limited in some circumstances by applicable law.
We process and store your personal information and other information described in this Privacy Notice in any country where we have facilities or in which we engage third-party service providers for the purposes described in this Privacy Notice, including the United States and Canada. Your information may be transferred to countries outside your country/state/province of residence, which may have different data protection rules than in your country/state/province of residence. While such information is outside of your country/state/province of residence, it is subject to the laws of the country/state/province in which it is held and may be subject to disclosure to the governments, courts or law enforcement, or regulatory agencies of such other country/state/province, pursuant to the laws of such country/state/province. If you would like more information about how we transfer your information, including our use of affiliates or third-party service providers outside your country/state/province please contact us by using the contact details provided in the section "HOW CAN YOU CONTACT US ABOUT THIS NOTICE?"
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