With rare conditions, there is no substitute for in-person connection with others who understand your challenges and share your joys. Our flok Family Camps create life-changing experiences that remind us we are not alone. These connection opportunities foster vital community support and cultivate long-lasting relationships through fun and informative programming.
In addition to our flagship family camp in Oregon, USA, we now offer a family camp in New Hampshire, USA, as well as an in-person retreat focused on adults! We also host a virtual camp to ensure equal access for those with travel barriers. Registration for Family Camp opens in March each year.
2024 CAMP DATES
Since 1997, we've provided grants to support higher education to more than 120 young adults with PKU, honoring the legacy of founding Board Member Dr. Robert Guthrie and fellow Newborn Screening Pioneer Dr. Richard Koch. Scholarship applications will be accepted from December 15, 2023-March 1, 2024 for the 2024-2025 academic year.
flok advocates for medical nutrition coverage for low-protein foods and formula as leader in the Patients and Providers for Medical Nutrition Equity Coalition.
During the formula crisis, we supported the community, coordinated communication between industry and those desperate for formula, rallied media attention for the issue, and our leader testified to Congress on behalf of the metabolic community.
Filmmaker Kurt Sensenbrenner has a unique perspective on life with PKU and highlights the joy and humor that co-exist with the challenges. flok is proud to support the production and distribution of The Low-Phe Life.
Every episode features a true story about life with a metabolic condition, told by those who lived it.
If you've ever tasted metabolic formula, weighed a food, or done a blood test, you'll see yourself in these stories!
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