Brenda Winiarski has cultivated one of the largest and most supportive Facebook groups dedicated to cooking (and enjoying!) the low-protein diet. And it's never been just for PKU, with one of the most diverse groups in terms of metabolic conditions and international members. 

Originally founded as a support forum for HowMuchPhe.org, the flok support group is a resource for all those with an inherited condition of protein metabolism, their caregivers, and their clinicians. From food, to exercise, to treatment options, the group members guide each other through the challenges (and joys) of managing these conditions.