Rare Disease Day: Celebrate With flok
Rare Disease Day brings the global rare disease community together to raise awareness and push for better access to care. See how flok is advocating for individuals with IMDs, from Capitol Hill to bringing visibility to our conditions on social—and how you can help.
Community Spotlight: Alyssa Keller
Meet Alyssa Keller—Guthrie-Koch Scholar, Certified Genetic Counselor (CGC), and Guthrie-Koch Scholarship Committee member at flok.
More Than a Label: The Science and Heart Behind flok’s Food Data
Meet Jenn Beazer, Dietitian and Low-Pro Cook Extraordinaire.
flok Family Camp East: Where Fun & Community Meet Lakeside
Over 150 community members gathered in Tuftonboro, New Hampshire for our second annual flok Family Camp East. Learn what made this camp experience unforgettable.
Community Spotlight: Will McClintock
Guthrie-Koch Scholar & flok intern Will McClintock chases his dreams while balancing life with PKU.
What Happens When a Prescription Drug Goes Generic?
Many members of our rare metabolic community rely on specialty prescription drugs—often brand-name medications. Learn what happens when generic versions become available.
Sephience™ Gets FDA Approval for Treatment of PKU
The U.S. Food and Drug Administration approved Sephience™ (sepiapterin), a new treatment from PTC Therapeutics, for children and adults living with PKU.
flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight
This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.
Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars
The Guthrie-Koch Scholarship program has helped more than 130 students pursue their academic and career goals. Hear the stories and ambitions of our 2025 scholarship winners.
Community Spotlight: Mitchell and Amy Magyar
Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »