Emily Pratt

Emily is a clinical creative, combining her background as a clinical social worker, healthcare program manager, and content writer. She spent her early career as a passionate advocate for people navigating the healthcare system and believes in the power of storytelling to create meaningful change. Emily has two children, including a daughter born in 2020 with tyrosinemia type 1 who inspired her to join flok. Her hobbies include crossword puzzles, reading crime fiction, hiking, and writing short stories and novels. As a Minnesota resident, she eternally roots for warmer winters and the opportunity to witness a major sports team championship.

flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight

This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.

Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars

Each year, flok celebrates young adults who are balancing rare metabolic conditions with big ambitions. Since 1997, the Guthrie-Koch Scholarship program... more »

Community Spotlight: Mitchell and Amy Magyar

Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »

Shaping Treatment Together: The Power of Patient Voices in EL-PFDD Meetings

Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »

flok Family Camp East 2024 Recap

FAST FACTS:FAMILY CAMP EAST 2024WhereCamp Belknap in Tuftonboro, New Hampshire WhyTo connect, have fun, and unite in a shared vision for better... more »

Meet the flok: Organic Acidemias

Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »

Newborn Screening: A Lifesaving Start

For caregivers and those living with an inherited metabolic condition, newborn screening plays a pivotal role in our journeys. For some, it was a... more »

Back-to-School Tips for flok Parents

As the school year approaches, excitement builds for new classes and friendships. For parents of a child with an inherited metabolic condition, this... more »

Meet the flok: Urea Cycle Disorders (UCDs)

Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »

Infinite Horizons: flok’s 2024 Guthrie-Koch Fellows

At flok, we recognize the significant hurdles inherited metabolic conditions present, and celebrate the triumphs of those achieving their academic,... more »

Next ⇢