Emily Pratt

Emily is a clinical creative, combining her background as a clinical social worker, healthcare program manager, and content writer. She spent her early career as a passionate advocate for people navigating the healthcare system and believes in the power of storytelling to create meaningful change. Emily has two children, including a daughter born in 2020 with tyrosinemia type 1 who inspired her to join flok. Her hobbies include crossword puzzles, reading crime fiction, hiking, and writing short stories and novels. As a Minnesota resident, she eternally roots for warmer winters and the opportunity to witness a major sports team championship.

flok Family Camp East: Where Fun & Community Meet Lakeside

Over 150 community members gathered in Tuftonboro, New Hampshire for our second annual flok Family Camp East. Learn what made this camp experience unforgettable.

Community Spotlight: Will McClintock

Guthrie-Koch Scholar & flok intern Will McClintock chases his dreams while balancing life with PKU.

What Happens When a Prescription Drug Goes Generic?

Many members of our rare metabolic community rely on specialty prescription drugs—often brand-name medications. Learn what happens when generic versions become available.

Sephience™ Gets FDA Approval for Treatment of PKU

The U.S. Food and Drug Administration approved Sephience™ (sepiapterin), a new treatment from PTC Therapeutics, for children and adults living with PKU.

flok Family Camp West & Adult Retreat 2025: Our flok Community in Full Flight

This past June, flok hosted its largest Family Camp yet in Antelope, Oregon. Over 330 campers gathered at Washington Family Ranch for a memorable weekend filled with fun, community connection, and delicious low-protein food.

Rare and Remarkable: flok's 2025 Guthrie-Koch Scholars

The Guthrie-Koch Scholarship program has helped more than 130 students pursue their academic and career goals. Hear the stories and ambitions of our 2025 scholarship winners.

Community Spotlight: Mitchell and Amy Magyar

Argininosuccinic Aciduria Like many 17-year-olds, Mitchell Magyar is busy preparing for life after high school. He is diving into SAT prep, touring college... more »

Shaping Treatment Together: The Power of Patient Voices in EL-PFDD Meetings

Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »

flok Family Camp East 2024 Recap

FAST FACTS:FAMILY CAMP EAST 2024WhereCamp Belknap in Tuftonboro, New Hampshire WhyTo connect, have fun, and unite in a shared vision for better... more »

Meet the flok: Organic Acidemias

Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »

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