Living with a rare disease often means limited treatment options and few opportunities to share the personal challenges of managing the condition. What... more »
FAST FACTS:FAMILY CAMP EAST 2024WhereCamp Belknap in Tuftonboro, New Hampshire WhyTo connect, have fun, and unite in a shared vision for better... more »
Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »
For caregivers and those living with an inherited metabolic condition, newborn screening plays a pivotal role in our journeys. For some, it was a... more »
As the school year approaches, excitement builds for new classes and friendships. For parents of a child with an inherited metabolic condition, this... more »
Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »
At flok, we recognize the significant hurdles inherited metabolic conditions present, and celebrate the triumphs of those achieving their academic,... more »
Register for Camp East! FAST FACTS:FAMILY CAMP WEST 2024 WhereWashington Family Ranch in Antelope, Oregon WhyTo connect, have fun, and unite in a shared... more »
Our “Meet the flok” series profiles the inherited conditions of protein metabolism that make up our diverse community: Classical... more »
Once diagnosed with an inherited metabolic condition, our community members begin a lifelong journey of monitoring biomarkers to stay healthy. For some,... more »
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